Helping women with breast cancer make critical decisions about treatment options
One in eight women will develop breast cancer. The diagnosis is traumatic and life-altering, and information about treatment options can be overwhelming and confusing, particularly for women of lower socio-economic status (SES) or health literacy. The What Matters Most study seeks to demonstrate that women who have used the Option Grid or Picture Option Grid decision aids are meaningfully involved in their breast cancer surgery decisions, have lower anxiety, lower decision regret, higher quality of life, and perceive more coordination and integration of care compared to usual care. It also aims to demonstrate that the Picture Option Grid can reduce disparities in decision making and treatment choice between women of higher and lower socioeconomic status (SES).
STARTING IN SEPTEMBER 2017, 1,100
WOMEN WITH EARLY STAGE BREAST CANCER WILL RECEIVE AN OPTION GRID OR A PICTURE OPTION GRID OR USUAL CARE.
Researchers on the What Matters Most team are conducting a three-arm, randomized controlled trial at five large cancer centers across the U.S. Starting in September 2017, 1,100 women (approximately half of higher SES and half of lower SES) with early stage breast cancer will receive an Option Grid (patient decision aid comparing treatment options in a table format using words only) or a Picture Option Grid (patient decision aid using images and simple text) or usual care. All study materials will be available in English, Spanish, and Mandarin. We will measure decision quality, shared decision making, anxiety, decision regret, health literacy, quality of life, financial toxicity, and integration of health care delivery.