We have been at the forefront of research on
creating new partnerships that put patients' needs and goals first.
Under the traditional model of health care, physicians were the decision makers, and patients the passive recipients of care. Today, the physician-provider relationship is undergoing a dramatic transformation. There is a growing consensus among health care professionals that fully engaging patients and their families in care planning and treatment decisions leads to better care experiences and better health outcomes. This insight is especially meaningful for people with chronic conditions, such as diabetes or heart disease, who account for close to 90% of all health care spending in the United States.
At same time, advances in technology that enable the real-time tracking of symptoms, disease activity and treatments are revolutionizing the way health researchers are able to collect data. The result of these two evolutions coming together is the development of a “learning health system” in which the patient’s needs and goals— and the best current evidence—guide every treatment choice, and in which patient experience and the outcomes of real health care practice, in turn, generate the data that researchers need to improve health care. At The Dartmouth Institute, our researchers have been at the forefront of research on these new patient-provider partnerships.
Adapting a learning health system model from the successful Swedish Rheumatology Quality Registry approach—and working in partnership with specialty societies, patient advocacy groups, and foundations—The Dartmouth Institute is implementing an innovative, new model for two chronic conditions: cystic fibrosis and inflammatory bowel disease (IBD). New initiatives for patients suffering from rheumatoid arthritis and those in need of palliative care will start soon. Our researchers also are working to expand the geographic boundaries of coproduction through the creation of an International Coproduction Health Network (ICoHN).
AREAS OF EXPERTISE:
Eugene Nelson is a professor of community and family medicine at The Geisel School of Medicine at Dartmouth and The Dartmouth Institute for Health Policy and Clinical Practice. He serves as the director of Population Health and Measurement at The Dartmouth Institute and leads a program on new models to advance the coproduction of health care. Nelson is a national leader in health care improvement and the development and application of measures of quality, system performance, health outcomes, value, and patient perceptions. His current work is focused on using patient-centered registries to develop learning health systems capable of coproducing improved health care and innovative science. He leads a Dartmouth team that is conducting national proof of concept demonstration programs for several chronic disease populations including cystic fibrosis, inflammatory bowel disease (IBD), and rheumatology.
In the early 1990’s, Nelson and his colleagues at Dartmouth began developing clinical microsystem thinking. His work developing the “clinical value compass” and “whole system measures” to assess health care system performance has made him a well-recognized quality and value measurement expert.
He is the recipient of The Joint Commission’s Ernest A. Codman award for his work on outcomes measurement in health care. Nelson has been a pioneer in bringing modern quality improvement thinking into the mainstream of health care; he helped launch the Institute for Healthcare Improvement and served as a founding board member. He has authored over 150 publications and is an author of two recent books: Quality by Design: A Clinical Microsystems Approach and Value by Design: Developing Clinical Microsystems to Achieve Organizational Excellence.
He received an AB from Dartmouth College, an MPH from Yale University, and a DSc from Harvard University.
Joel R. King